EJ and Deb

On behalf of the Choroideremia Research Foundation and True Blood News at the Nest we would like to thank all the fans that contributed to EJ Scott’s “Dropping Calories for the Cure,” campaign. EJ has reached his goal and has brought in around $14,000 in donations and counting. True Blood News at the Nest and Bill’s Wiki’d Women are proud of the $3,500 dollars that we have helped bring in – and donations continue to grow.

EJ is not stopping there – now he is “running for the cure” in the Chicago Marathon. Running seems easy enough to us, but if you’re EJ Scott it’s very challenging. He will be running the marathon blindfolded due to the extreme sensitivity his eyes have to light as a result of the disease. You can keep yourself updated with EJ’s progress by visiting his facebook page or his blog

FaceBook
Blog

Those of you that know me, know that I have attached myself to this cause and won’t let go. When you look at EJ and my friend Cory MacDonald, you see grown men struggling with a disease that threatens to rob them of one of life’s most precious gifts – the gift of sight.

As a mother, when I look at Cory and EJ, I see two children that struggled growing up. Two children that have never driven a car, never seen a star and now, darkness is closing in even more as they age. What we have to remember, is this ugly disease starts at birth. Choroideremia is an inherited disorder that causes blindness due to degeneration of the choroid and retina. When EJ’s sister sent us an email with a kind thank you and an attached file, my heart was not prepared when I opened the attachment. Staring back at me, were two little boys, one with big blue eyes and the other with light brown eyes and only two baby teeth. Choroideremia affects this family and many others in a profound way because it CAN be cured. But, like anything else, they need funding to achieve the cure.

Fundraising does not have to stop at EJ and True Blood.

Our own Aem was present with Cory at the Beerfest fundraiser where we donated several items for auction. Liv, Aem, KF and myself escorted Cory around EYECON where we donated several items to be raffled off including a signed True Blood beverage (by: Allan Hyde, Ashley Jones, Sam Trammell, Nelsan Ellis and Todd Lowe), T-shirts and more. And recently, Cory came to my home town where my husband and I entered our Bluesmobile in the local parade for the Choroideremia Research Foundation. We have more things coming…

Cory and The TB-News ladies @ EYECON

"The Blues Brothers for the Cure" - Cory and Matt

You can do other things as well – it doesn’t have to stop at this article. Your donation does not have to be money, donate your time. Call your local Barnes & Noble bookstore and sign up to wrap presents for the holidays. Wrap grifts with some friends and send the donations to the CRF. This is one of the simple things that you can do and I am sure if you reach out to your community, get creative, you can do much more. If you do – we want to know. We will highlight your fundraiser for the CRF in an article and interview you. Every little bit helps. Thank you for your support.

CHM

You can donate by clicking here:

Send Check to the address below – if you are supporting someone, add their name in the memo section.
The Choroideremia Research Foundation
23 East Brundreth St
Springfield MA 01109

Posted in Choroideremia, Deborah Ann Woll